This article discusses practical approaches to maintaining mobility in individuals with spinal muscular atrophy (SMA). It emphasizes the importance of a nutritious diet, ongoing therapy, aquatic exercises, and respiratory care. Additionally, it highlights how assistive technology like exoskeletons and wheelchairs, supported by programs such as the MDA, can enhance independence and quality of life for SMA patients. Staying active is crucial to managing symptoms and preventing complications associated with SMA.

Effective Approaches to Preserve Mobility in Spinal Muscular Atrophy

Living with a long-term condition that reduces muscle strength presents unique challenges, particularly regarding movement and independence. Spinal muscular atrophy (SMA) is a hereditary disease that causes progressive muscle weakness, especially affecting breathing and limb coordination. Limited muscle activity can hinder daily functions, but staying inactive may lead to complications such as joint stiffness, contractures, breathing difficulties, and digestive issues. Maintaining physical activity is essential for managing symptoms and enhancing overall wellbeing.

Considering the challenges posed by SMA, staying physically active is crucial. Here are some effective methods to maintain movement despite the condition:

Follow a nutritious diet: Consuming a balanced diet that includes fruits, vegetables, lean proteins, and whole grains helps support a healthy weight and boosts energy levels. Proper nutrition supplies vital vitamins and minerals that promote muscle health and immune function.

Participate in continuing therapy: Regular physical and occupational therapy sessions are vital. They help sustain joint flexibility and muscle strength, preventing contractures and supporting mobility. Consistent therapy extends the functional lifespan of muscles and joints.

Try aquatic exercises: Water-based workouts provide a low-impact environment for muscle strengthening and range-of-motion improvements. They lessen joint strain and can enhance respiratory muscle function through activities like resistance movements and breath control exercises.

Protect lung health: Avoiding respiratory infections is essential for individuals with SMA. Working with respiratory specialists to implement preventive strategies can help maintain lung capacity and support continued activity.

Role of technology in supporting mobility: Innovative assistive devices such as exoskeletons, wheelchairs, and braces greatly enhance independence. The Muscular Dystrophy Association (MDA) offers a national program that provides refurbished mobility aids, enabling those unable to afford new devices to remain active and engaged.